In which I give a scathing tongue lashing to the practice of medicine. Or not.

I have been out of commission for almost six months, by order of my doctors. No work, no school, no income, no nothing.

My body has been deteriorating for eight years. When it started I was convinced I had chronic fatigue syndrome, but I was young and no one listened. \”No sweetie, only Gulf War soldiers get CFS.\” Of course, that is what we all thought back in 1995.

Two weeks ago a substitute orthopedist for my carpal tunnel syndrome says \”This is ridiculous, we cannot treat you for CTS – it will not help – you have fibromyalgia. Go get treated for that and then worry about the CTS.\”

I left that appointment, talked to all my doctors and they all concured – it made perfect sense. I set up an appointment with my primary care physician, but then my father gets up in arms about the situation and makes me change the appointment to an appointment with his physician instead so that he can talk to the doctor himself. Then my dad tries to back out of going to said appointment in favor of working, and my mom says if he goes to an eviction instead of my doctors appointment, that he will not be allowed back in their house, so he finally works out a way to go to my appointment and then spends the entirety of it on his cell phone – but that is another story.

Today\’s appointment was supposed to be the one where I had the tests run to rule out things like lupus and to start setting up a treatment plan, as well as to start the SSI paper trail. Instead, I got slapped with the diagnosis of \’general myalgia\’ until the tests are run, and was referred to two other doctors that I have to see, as well as John Hopkins hospital.

In other words, I still do not have a real diagnosis, I still have to have tests run (now including a muscle biopsy – ouch!), I still have not advanced towards getting any money to pay for this, I still am not allowed to work, I still have no health insurance coverage, and I have to wait another week and a half before I can even get a consultation with the next doctor I have to see; who knows how long I will have to wait for the tests?

I understand that they have to cover all their bases, but I would kind of like my life back, please. I would kind of like to move, and get back to business, and get my servers running, and start treatment to start feeling better, and be able to make long term plans again.

In the meantime, I still have a few more sites to design and a bit more content to come up with, so I still have plenty to do, trusty voice recognition on head (not hand). And if worse comes to worse, I can always deal cocaine. I would make a great drug dealer. I now have the seedy hair cut for it, and everything.